Published Versions 2 Vol 2 (1) : 10-29 2019
FAIR Principles: Interpretations and Implementation Considerations
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Abstract & Keywords
Abstract: The FAIR principles have been widely cited, endorsed and adopted by a broad range of stakeholders since their publication in 2016. By intention, the 15 FAIR guiding principles do not dictate specific technological implementations, but provide guidance for improving Findability, Accessibility, Interoperability and Reusability of digital resources. This has likely contributed to the broad adoption of the FAIR principles, because individual stakeholder communities can implement their own FAIR solutions. However, it has also resulted in inconsistent interpretations that carry the risk of leading to incompatible implementations. Thus, while the FAIR principles are formulated on a high level and may be interpreted and implemented in different ways, for true interoperability we need to support convergence in implementation choices that are widely accessible and (re)-usable. We introduce the concept of FAIR implementation considerations to assist accelerated global participation and convergence towards accessible, robust, widespread and consistent FAIR implementations. Any self-identified stakeholder community may either choose to reuse solutions from existing implementations, or when they spot a gap, accept the challenge to create the needed solution, which, ideally, can be used again by other communities in the future. Here, we provide interpretations and implementation considerations (choices and challenges) for each FAIR principle.
Keywords: FAIR guiding principles; FAIR implementation; FAIR convergence; FAIR communities; choices and challenges
The work of AJ, CE, MT, RC, RK and MR is supported by funding from the European Union’s Horizon 2020 research and innovation programme under the EJP RD COFUND-EJP N° 825575. The work of AJ, CE, CAG, MT, NJ, RH, MR, S-AS, PMcQ, PR-S and DB is supported by funding from ELIXIR EXCELERATE, H2020 grant agreement number 676559. RH was further funded by NL NWO NRGWI.obrug.2018.009. NJ and CAG were funded by CORBEL (H2020 grant agreement 654248). NJ, CAG, S-AS, PMcQ, PR-S and DB were funded by FAIRplus (IMI grant agreement 802750). NJ, CAG, MT, MR, S-AS, PMcQ, PR-S and DB were funded by EOSClife H2020-EU (grant agreement number 824087). CAG was funded by DMMCore (BBSRC BB/M013189/). MT, MR received funding from NWO (VWData 400.17.605). S-AS, PMcQ, PR-S and DB have been funded by grants awarded to S-AS from the UK BBSRC and Research Councils (BB/L024101/1; BB/L005069/1), EU (H2020-EU 634107; H2020-EU 654241, IMI (IMPRiND 116060), NIH Data Common Fund, and from the Wellcome Trust (ISA-InterMine 212930/Z/18/Z; FAIRsharing 208381/A/17/Z). The work of AW has been funded by grant award number GM089820 from the National Institutes of Health. MK was funded by the European Regional Development Fund (KVW-00163). The work of NM was funded by the National Science Foundation (OAC 1839030). The work of MDW is funded by Isaac Peral/Marie Curie cofund with the Universidad Politécnica de Madrid and the Ministerio de Economía y Competitividad grant number TIN2014-55993-RM. The work of BM, ES, LB and KJ is funded by the H2020-EU 824068. The work of BM, ES and LB is funded by the GO FAIR ISCO grant of the Dutch Ministry of Science and Culture. The work of GG is supported by the OCEAN Project (FUB). MC received funding from the Innovative Medicines Initiative 2 Joint Undertaking under grant agreement No. 802750.
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Article and author information
Cite As
A. Jacobsen, R. de Miranda Azevedo, N. Juty, D. Batista, S. Coles, R. Cornet, ... & E. Schultes. FAIR principles: Interpretations and implementation considerations. Data Intelligence 2(2020), 10–29. doi: 10.1162/dint_r_00024
Annika Jacobsen
Annika Jacobsen is a postdoctoral researcher at the BioSemantics group, Human Genetics Department, Leiden University Medical Center, The Netherlands. She obtained her Bachelor and Master degrees at the Technical University of Denmark in 2009 and 2012, and her PhD degree at the Vrije Universiteit Amsterdam in 2019. Her research interests are to create interoperable FAIR rare disease data with the aim to learn more about cause, diagnosis and treatment.
Ricardo de Miranda Azevedo
Ricardo de Miranda Azevedo is an independent and pragmatic researcher with a background in psychology and clinical epidemiology who is happy to work in multidisciplinary settings. He is a great multilingual communicator who is enthusiastic about scientific research but also for computers and teaching different topics. He is often labeled as a creative mind with a problemsolver attitude.
Nick Juty
Nick Juty is a Senior Research Technical Manager in the eScience Lab, based in the Departmentof Computer Science at The University of Manchester. He is involved in numerous EU projectsrelating to aspects of FAIR and interoperability, particularly with respect to identifier systems andmetadata. Nick previously worked at EMBL-EBI where he helped create the identifierresolution system. Nick holds a PhD in Biochemistry from the University of Southampton.
Dominique Batista
Dominique Batista is a young developer specialized in creating tools and software for scientificresearchers and academics. His current activities focus on delivering clean, tested and documentedopen-source code to help structuring metadata over the Web. Dominique’s side activities focus onproducing knowledge and scientific papers as well as representing the team in internationalconferences. He is passionate about computer (hardware, Web), science (biology and physics),video games and much more.
Simon Coles
Simon J. Coles is Professor of Structural Chemistry at the University of Southampton and Directorof the UK National Crystallography Service. He has promoted open approaches to research andeducation in Chemistry for many years and is now also Director of the UK Physical Sciences Datascience Service.
Ronald Cornet
Ronald Cornet holds a position as associate professor at the department of Medical Informaticsin the Amsterdam Public Health Research Institute, Amsterdam UMC. His research focuses onsemantic interoperability, both from a technical perspective and from a user’s point of view,including natural language processing. Ronald is involved in health care information standardization,among others as member of the Dutch, European (CEN) and global (ISO) standardization committeeson health informatics. He is also involved in SNOMED International, which is responsible formaintenance and further development of SNOMED CT. He chairs the IMIA working group onLanguage and Meaning in Biomedicine, and participates in various international projects includingFAIR4Health and European Joint Programme Rare Diseases (EJP-RD).
Mélanie Courtot
Mélanie Courtot is a Metadata Standards coordinator at EMBL-EBI, where her team designs toolsto streamline multi-omics submissions and develops integrated metadata strategies across theinstitute’s archival resources and other projects such as FAIRPlus and CINECA, focusing on semanticenrichment and harmonization for pharmaceutical and cohort data, respectively. In the context ofGA4GH which she joined in 2016, Mélanie co-leads groups working on data access and encodingas well as clinical and phenotypic standards.
Mercè Crosas
Mercè Crosas is Harvard University’s Research Data Officer, with Harvard University InformationTechnology (HUIT), and Chief Data Science and Technology Officer at Harvard’s Institute forQuantitative Social Science (IQSS). In her role at HUIT, Dr. Crosas provides leadership to matureHarvard’s data management and governance practices. She works in close collaboration with keyconstituencies in Research, Information Technology, and the Library to coordinate support for thedata lifecycle and guide university policy, process, and procedures for research data. Dr. Crosasbrings to this role a wealth of experience in data management architecture and internationalcommunity data standards as well as the vision to make data more accessible for research whilepreserving privacy.
Michel Dumontier
Michel Dumontier is the Distinguished Professor of Data Science at Maastricht University andco-founder of the FAIR (Findable, Accessible, Interoperable and Reusable) data principles. Hisresearch focuses on the development of computational methods for scalable and responsiblediscovery science. Previously at Stanford University, Dr. Dumontier now leads the interfacultyInstitute of Data Science at Maastricht University to develop socio-technological systems foraccelerating scientific discovery, improving human health and well-being, and empoweringcommunities with ethical data-driven decision making.
Chris T. Evelo
Carole Goble
Carole Goble is Professor of Computer Science at The University of Manchester. Over the past 25years Carole has pursued research interests in the acceleration of FAIR scientific innovation through:distributed computing, workflows and automation; knowledge management and the SemanticWeb; social, virtual environments; software engineering for scientific software; and new models ofscholarship for data-intensive science. Carole has served on numerous committees and currentlyserves in the G7 Open Science Working Group as the UK expert. In 2008 she was awarded theMicrosoft Jim Gray e-Science award for contributions to e-Science and in 2010 was elected aFellow of the Royal Academy of Engineering. In 2014 she was awarded the Commander of theOrder of the British Empire for services to Science.
Giancarlo Guizzardi
Giancarlo Guizzardi is currently a professor of computer science and head of the Conceptualand Cognitive Modeling Research Group (CORE) at the Free University of Bozen-Bolzano, Italy.He has a PhD in Computer Science (with the highest distinction) from the University of Twente,The Netherlands. He has been working for more than two decades in the interplay between formaland applied ontology, cognitive science, philosophical logics, linguistics, and computer science(in particular, in the areas of conceptual modeling, enterprise modeling and knowledgerepresentation). He has published circa 270 papers, many of which have received best paperawards in important conferences. He has also played a multitude of roles in key conferences inthe field (e.g., general chair, program committee chair, and keynote speaker). Finally, he is anassociate editor for the Applied Ontology journal, member of a number of international journaleditorial boards, and of the Advisory Board of the International Association for Ontology and itsApplications (IAOA).
Karsten Kryger Hansen
Ali Hasnain
Ali Hasnain is a Lecturer and Researcher at Insight Centre for Data Analytics, National Universityof Ireland Galway (NUIG). Before joining DERI, Hasnain completed a master’s degree in “Engineeringand Management of Information Systems” from Royal Institute of Technology, KTH, Stockholm,Sweden. He received another master’s degree from the same University in “Project Managementand Operational Development”. Career spans over five years of experience in Software industryand more than a decade in academia at various positions. It includes work experience as Lecturer,Senior Researcher, Project Manager and lead scientist. Teaching responsibilities at NUI Galwayincludes mentoring and co-supervising master’s and PhD students. With strong scientific publishingrecord the list of selected Scientific Publications in the Field of Computing, Data Analytics, SoftwareEngineering and Data Science positively reviewed and published at world renowned Journals andconferences can be seen at: (around 650 citations). Ali Hasnain is theProgram Committee Member of international conferences and workshops e.g, VOILA-ISWC andKESW. He remained involved in organizing workshops and tutorial at K-Cap 2015 and SWAT4LS2015–2018 for international audiences. His current research interests include: FAIR DATA, OpenData, Big Data, Semantic Models, Data Cataloging/Linking, Visual Interfaces and Data Integration.
Kristina Hettne
Kristina Hettne, PhD, is a Digital Scholarship Librarian at the Centre for Digital Scholarship,Leiden University Libraries in Leiden, The Netherlands. At the Centre, she helps researchers navigateOpen Science and shape the future of research data management. She is the Centre’s liaison withGO FAIR and part of the FAIR Convergence Matrix development team for optimizing the reuse ofexisting FAIR-related resources. She obtained her PhD degree in bioinformatics of toxicogenomicsfrom the University of Maastricht in 2012. She is a review editor for “Frontiers in Big Data”,member of the Advisory Board of the Wiley journal Genetics & Genomics Next, and co-author ofmore than 30 research publications.
Jaap Heringa
Jaap Heringa is full professor of Bioinformatics and director of the Centre for IntegrativeBioinformatics (IBIVU) at Vrije Universiteit of Amsterdam, The Netherlands. Heringa has beenscientific co-director of the Netherlands Bioinformatics Centre (NBIC) from 2009–2013. He hasserved as deputy Head of Node of ELIXIR-NL from 2013–2016, and since April 2016 as its Headof Node. Since 2014 he has been director of the Netherlands Bioinformatics and Systems BiologyResearch School (BioSB) and as of January 2016 he has been scientific lead of the Dutch Techcentrefor Life Sciences (DTL). Heringa has been executive editor of Molecular Data Science since 2018and became head of the Department of Computer Science at Vrije Universiteit in that same year.His areas of research are Bioinformatics and Systems Biology, while current research interestsrevolve around formal modeling strategies, new sequence analysis strategies, protein structure andinteraction prediction, cancer-related data integration, and semantic Web-based data stewardshipand data-tools interoperability.
Rob W.W. Hooft
Rob Hooft is Manager of the Dutch tasks in the European ELIXIR infrastructurefor life science data,at the Dutch Techcenter for Life Sciences (DTL). After working for many years in the industry, Robmoved back to the academic world and joined the Netherlands center for Bioinformatics, NBIC,as CTO for the service-directed program. Via a two-year excursion to the Netherlands eScienceCenter from where he ran the data program of DTL he is now working for DTL itself. Rob has beenbuilding up a body of knowledge on FAIR research data stewardship since early 2014. Rob alsorepresents ELIXIR relations in the Research Data Alliance.
Melanie Imming
Melanie Imming authored reports on FAIR Data and Data Stewardship practices in The Netherlandsfor SURF and the Dutch National Contact Point for Research Data Management, LCRDM. As aconsultant with a strong international network in the area of Open Science, FAIR Data and DigitalCultural Heritage, Melanie is experienced in project management and engaging stakeholders fromdifferent domains, and a known advocate for Open Science practices.
Keith G. Jeffery
Keith Jeffery is an independent consultant working on EPOS, ENVRIplus and ENVRIFAIR as well as on advanced CLOUD computing and Virtual research Environments. He is past Director IT atSTFC with 360,000 users, 1,100 servers and 140 staff. Keith holds three honorary visitingprofessorships, is a Fellow of the Geological Society and the British Computer Society, a CharteredEngineer & IT Professional and an Honorary Fellow of the Irish Computer Society. Keith is pastPresident of ERCIM and euroCRIS, and serves on international expert groups, conference boardsand assessment panels. He had advised government on IT. He chaired the EC Expert Groups onGRIDs and on CLOUD Computing.
Rajaram Kaliyaperumal
Rajaram Kaliyaperumal was born in Pondicherry, India. He received a B.Tech degree in BiomedicalEngineering from Pondicherry University, India in 2008 and an M.Sc degree in BiomedicalEngineering from Linköping University, Sweden in 2011. In 2012 he joined the department ofComputer and Information Science, Linköping University as a software engineer. During this timehe developed methods and tools to align and repair ontologies. In 2013 he joined the Biosemanticsgroup, Leiden, in the Netherlands as a software developer. His current research activities includeinvestigating the use of semantic Web technology in the context of FAIR data and developingprototypes to demonstrate the use of FAIR data.
Martijn G. Kersloot
Martijn Kersloot is a PhD candidate at the Department of Medical Informatics in the AmsterdamUMC in collaboration with Electronic Data Capture platform Castor EDC. He has a background inMedical Informatics and his research focuses on the creation of a scalable solution that will aid inthe standardization of medical research data.
Christine R. Kirkpatrick
Tobias Kuhn
Tobias Kuhn is an assistant professor at the Computer Science department of the VU UniversityAmsterdam. After receiving his PhD at the Institute of Computational Linguistics of the Universityof Zurich in 2010, he worked at the University of Malta, Yale University, and ETH Zurich. Hisresearch interests span fields including knowledge representation, controlled natural language,socio-technical systems, and scholarly communication. His recent work focuses on the approachof nanopublications, how cryptographic methods and provenance modelling can support trust andreliability, and how this can support the initiatives around the FAIR principles for data management.
Ignasi Labastida
Ignasi Labastida is currently the work at the Head of the Research Unit at the University ofBarcelona’s Learning and Research Resources Centre (CRAI) where he also leads the Office for theDissemination of Knowledge. He is currently chairing the Board of SPARC Europe and he is amember of the Steering Committee of the Info and Open Access Policy Group at the League ofEuropean Research Universities (LERU). He is the co-author of the LERU Roadmap for ResearchData and the LERU Roadmap on Open Science. He has participated in several research projectsincluding LEARN, a EU H2020 project focused on helping research performing institutions inmanaging their research data.
Barbara Magagna
Barbara Magagna holding a master degree in landscape planning and in geoinformatics, has24 years of experience working in the field of GIS, landscape ecology modelling and databasemanagement for projects operating at different scales. Her interests and formation moved in thelast years also towards ontology engineering and process facilitation, abilities she could alreadyapply in several national and European semantic projects. She had been working for the Universityof Natural Resources and Applied Life Sciences, the University of Vienna and since December 2007for the Federal Environment Agency (Umweltbundesamt GmbH) where she undertakes the functionof a semantic analyst and database designer. She was involved in FP7 and H2020 projects asfacilitator in the development process of terminologies like SERONTO and EnvThes. She hasexperience as work package lead related to data management, in the design of UML models andXML schemas in the air quality data reporting area, in the design of semantic models in projectsrelated to Environmental Research Infrastructures (ENVRI).
Peter McQuilton
Peter McQuilton holds a 1st class BSc (Hons) degree in Genetics from the University of Leeds(2000) and a PhD (2004) in Drosophila neurodevelopment from the University of Cambridge. Peterhas spent over 15 years working in the fields of bioinformatics, biocuration and data wrangling,first as a genetic literature curator at FlyBase, the premier database on drosophila genes andgenomes, and then as part of the Data Readiness Group at the Oxford e-Research Centre. As partof the Data Readiness Group, Peter leads the FAIRsharing project. FAIRsharing is a manuallycurated, searchable portal of interlinked standards, databases and policies, from all domains.
Natalie Meyers
Natalie Meyers is an E-Research librarian at University of Notre Dame’s Navari Family Center forDigital Scholarship where she helps pioneer and provide research data consulting services,including more in-depth data management services in support of grant-funded research. She servesas an ambassador and advisor to groups and individuals regarding data and digital contentmanagement. She provides advice & works with units across campus and externally to providecollaborative, team-based support for reproducible research, data management and softwarepreservation needs, as well as data and metadata services for the Navari Center for DigitalScholarship.
Annalisa Montesanti
Annalisa Montesanti is the Program Manager at the Health Research Board (HRB). She isresponsible for developing and managing a portfolio for health research careers in order to developa coordinated approach to building capacity in health research in Ireland. She has developed aframework promoting the training, support and career development of academic researchers andhealth practitioners with the long-term goal of training individuals as collaborative researcher inorder to generate ideas and undertake research, drive the integration of research and evidence intopolicy and practice, thus improving decision-making and, ultimately, health outcomes and creatinga wider impact in society. Annalisa is also deeply involved in promoting open science, FAIR dataand research data stewardship through several international collaborations. Annalisa had manyyears of experience in scientific research in in Italy, England and Ireland. She has a BSc fromPalermo University in Italy and a PhD in cancer biology from the Institute of Molecular Medicinein Oxford, UK.
Mirjam van Reisen
Mirjam van Reisen is Professor International Relations, Innovation and Care at Tilburg Universityand Professor Computing for Society at Leiden Centre for Data Science, at the University of Leiden.Van Reisen is Research Leader of the Globalization, Accessibility, Innovation and Care (GAIC)network. Van Reisen is the Coordinator of the Go-FAIR Implementation Network Africa. Van Reisenis a member of the Dutch Advisory Council on International Affairs (AIV) and Chair of theDevelopment Assistance Committee (COS). Van Reisen leads the oganisation EEPA in Brussels. Sheis a member of the Board of Philips Foundation and the SNV Netherlands Development Organisation.Van Reisen received the Golden Image Award in 2012 by President Ellen Johnson Sirleaf.
Philippe Rocca-Serra
Philippe Rocca-Serra, after an engineering degree from University of Rennes, received his PhDin Molecular Genetics from University of Bordeaux. He worked at EMBL-EBI in helping establishthe European microarray archive. He has 10 years of practice in data management and has beenan active member of several standardization efforts, aiming at promoting open data and openscience vision. He is technical coordinator of the ISA project, part of the OBO Foundry editorialboard and participates in resource development as part of the OBI project.
Robert Pergl
Robert Pergl is an Associate Professor at Department of Software Engineering, Faculty of InformationTechnologies of Czech Technical University in Prague, Czech Republic, where he founded “Centrefor Conceptual Modelling and Implementation”, a group focusing on research, development andapplications of methods and tools for ontological engineering, enterprise engineering, softwareengineering and data stewardship. Robert Pergl is a National Node Committee member of ELIXIRCzech Republic. He is a member of several GO FAIR initiatives and projects and together withRob Hooft he leads the Data Stewardship Wizard development. Contribution: Leading the authors’team and authoring process, communications author, copy-editing and quality assurance, DataStewardship Wizard details.
Susanna-Assunta Sansone
Robert Pergl is an Associate Professor at Department of Software Engineering, Faculty of InformationTechnologies of Czech Technical University in Prague, Czech Republic, where he founded “Centrefor Conceptual Modelling and Implementation”, a group focusing on research, development andapplications of methods and tools for ontological engineering, enterprise engineering, softwareengineering and data stewardship. Robert Pergl is a National Node Committee member of ELIXIRCzech Republic. He is a member of several GO FAIR initiatives and projects and together withRob Hooft he leads the Data Stewardship Wizard development. Contribution: Leading the authors’team and authoring process, communications author, copy-editing and quality assurance, DataStewardship Wizard details.
Luiz Olavo Bonino da Silva Santos
Luiz Olavo Bonino da Silva Santos is the International Technology Coordinator of the GO FAIRInternational Support and Coordination Office, and Associate Professor of the BioSemantics groupat the Leiden University Medical Centre in Leiden, The Netherlands. His background is in ontologydriven conceptual modelling, semantic interoperability, service-oriented computing, requirementsengineering and context-aware computing. In the last five years Luiz has been involved in a numberof activities to realize the FAIR principles, including the development of a number of technologiesand tools to support making, publishing, indexing, searching and annotating FAIR (meta)data.
Juliane Schneider
In a 20-year career specializing in metadata, ontologies and discovery, Juliane Schneider hasworked in start-ups, on Wall Street in an insurance library, at New York University medical center,for EBSCO publishing, and at The University California, San Diego in the Research Data CurationProgram. Her longest stint at any job was the six years she spent at Countway Library as theMetadata Librarian, and now she has returned to Harvard as the Team Lead/Lead Data Curator forHarvard Catalyst.
George Strawn
George O. Strawn is currently the director of the Board on Research Data and Information at theNational Academies of Sciences, Engineering, and Medicine where he focuses on Open Scienceand FAIR data. Prior to joining the Academies, Dr. Strawn was the director of the NationalCoordination Office (NCO) for the Networking and Information Technology Research andDevelopment (NITRD) Program and co-chair of the NITRD interagency committee.
Mark Thompson
Mark Thompson is a senior research scientist in the Biosemantics group at the Human Geneticsdepartment of Leiden University Medical Centre. He obtained a PhD in Computer Science fromthe University of Amsterdam in 2012. He has expertise in hardware and software architecture (co-)design, data management, data modeling, FAIR data infrastructure and computational aspects ofknowledge discovery.
Andra Waagmeester
Tobias Weigel
Tobias Weigel is working at the German Climate Computing Center (DKRZ) in the area ofe-infrastructures. Tobias has worked extensively on Digital Object and Persistent Identifier servicesin multiple contexts, including community cyberinfrastructures (ESGF, ENVRI) and cross-disciplinaryinfrastructures (EUDAT, EOSC). He has co-chaired multiple working groups of the Research DataAlliance (RDA) to convene on technical recommendations in the area of identifiers, metadata andrelated e-infrastructures services. Tobias is editorial board member of the CODATA Data ScienceJournal and member of the RDA Technical Advisory Board. Tobias holds a PhD from University ofHamburg in computer science.
Mark D. Wilkinson
Mark D. Wilkinson is Fundacion BBVA Chair in Biotechnology and Isaac Peral DistinguishedResearcher at the Center for Plant Biotechnology and Genomics, Technical University of Madrid.For the past 15 years, his laboratory has focused on designing biomedical data/tool representation,discovery, and automated reuse infrastructures - what would now be called “FAIR”. He is leadauthor of the primary FAIR Data Principles paper, and lead author on the first paper describing areference implementation of those principles over legacy data. He is a founding member of theFAIR Metrics Authorship Group, tasked with defining the precise, measurable behaviors that FAIRresources should exhibit. Beyond FAIR, his laboratory also studies the application of ArtificialIntelligence techniques to the problem of microbiome engineering.
Egon Willighagen
Egon Willighagen is applying cheminformatics and chemometrics to biological questions asAssistant Professor at Maastricht University. He has been promoting Open Science for many yearsand is Editor-in-Chief of the Journal of Cheminformatics.
Peter Wittenburg
Peter Wittenburg was Executive Director of Research Data Alliance (RDA) Europe, Member ofRDA Technical Advisory Board, and Scientific Coordinator of European Data Infrastructure (EUDAT).He set up and led the Technical Group with about 30 experts at Max Planck Institute (MPI) forPsycholinguistics and then led the Language Archiving Group with about 25 experts. Since 2000he has played leading roles in a variety of European (funded by the European Commission) andnational projects (funded by MPS, DFG, BMBF, NWO 23) and ISO initiatives (ISO TC37/SC4). Hewon the Heinz Billing Award of the MPS for the advancement of scientific computation in 2011and received an honorary doctorate from University Tübingen in 2013.
Marco Roos
Marco Roos is assistant professor and group leader of the Biosemantics group of the LeidenUniversity Medical Centre (Human Genetics Department). The group is known for co-founding andadvocating the FAIR data principles. His research focus is on making state-of-the-art computerscience applicable to enhance biomedical research (e-Science), particularly the application ofcomputational knowledge discovery and linked data techniques to address translational researchchallenges of rare human diseases. At an international level, Marco is focused on the implementationof FAIR principles to create a powerful substrate and worldwide robust infrastructure for knowledgediscovery across distributed rare disease data resources.
Barend Mons
Barend Mons is Professor of BioSemantics at the Human Genetics Department of Leiden UniversityMedical Center and founder of the BioSemantics group. He was elected CODATA President in2018. Next to his leading role in the research of the group, Barend plays a leading role in theinternational development of “data stewardship” for biomedical data. For instance, he was headof-node of ELIXIR-NL at the Dutch Techcentre for Life Sciences (until 2015), is Integrator LifeSciences at the Netherlands eScience Center, and board member of the Leiden Center of DataScience. In 2014, Barend initiated the FAIR data initiative and in 2015, he was appointed Chair ofthe European Commission’s High Level Expert Group for the “European Open Science Cloud”,from which he retired by the end of 2016. Presently, Barend is co-leading the GO FAIR initiative,an initiative to kick start dvelopments towards the Internet of FAIR data and services, which willalso contribute to the implementation of components of the European Open Science Cloud. Thefocus of the contribution of the BioSemantics group is on developing an interoperability backbonefor biomedical applications in general and rare disease in particular.
Erik Schultes
Erik Schultes is International Science Coordinator at the GO FAIR International Support andCoordination Office where he has been working with a diverse community of stakeholders todevelop FAIR data and services. Erik is also a member of the Leiden Center for Data Science atLeiden University. Erik is an evolutionary biologist with long standing interests in data-intensiveresearch. In addition to private consulting, he has held previous academic appointments at theUniversity of California, Los Angeles, The Whitehead Institute for Biomedical Research at theMassachusetts Institute of Technology, Duke University, and The Santa Fe Institute.
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